T is for Twelve, Temple, and Tourette

**I had a heart-to-heart with Nate in preparation for this post. I wanted to make sure that, since he is getting older and everything, he is still okay with me blogging about him and his experiences. I want to respect his privacy. He thought about it and told me he really is fine with it but if he ever changes his mind, he’ll let me know.**

This birthday was a big one. Nathan Robert turned 12! All he wanted to do was take his friends to see the new Star Wars movie so that’s exactly what went down. What a fun, great group of boys surrounding him! They learn a lot from each other and always enjoy hanging out and being typical boys. Personally, I’m grateful for these boys’ parents who are raising fine young men. Nate is very blessed!

Nate graduated primary. Although not required, he decided to work and earn his Faith in God certificate by developing his talents, serving others, studying and journaling, and teaching his family about some of the principles of the gospel.

For his Aaronic Priesthood ordinance, my parents and Rob’s parents came for the occasion. After the ordination blessing, the bishop gave the grandparents an opportunity to say a few words. Our dads said some nice words and helped keep the spirit in the room. Then it was my turn. Nate and I both got emotional as I told him that I don’t expect perfection from him, that we will both make mistakes through this new “teenage” phase of our relationship, and that we will keep loving each other no matter what. It may not sound like much, but since I know my son and I know myself a little better these days, it was exactly what needed to be expressed. We had a special mother/son connection happen in that moment and we both felt safe, accepted, and loved. It’s a memory I will never forget.

The next Sunday he passed the Sacrament for the first time and it’s been awesome seeing him take on that responsibility.

Next up was his first trip to the temple to do Baptisms for the Dead. Rob and I have been using the Take a Name LDS Family History app which searches for missing ordinances in your family line. It’s found quite a few for us so we had some family names to do. Nate chose to go to the Draper Temple. Rob stood in to baptize and confirm him. It was a great experience. Afterward, we went out for Utah scones.

Now, for the Tourette Syndrome portion of the post (most people say Tourettes with an S, but technically that is incorrect). I noticed Nate’s first tic when he was around four years old but just recently took him in to be officially diagnosed. A tic is an involuntary, repetitive movement or vocalization. Now, Tourette is usually recognized as bursting out swear words uncontrollably. Yes, that’s possible, but only in the most severe cases and is not very common at all. Here are the more common tics, all of which Nate has had over the years (Little Cara is also developing her own tics, including face and eye movements and arm jerks):

  • Throat clearing
  • Sniffling
  • Repetitive eye blinking
  • Stretching eyes wide open
  • Nostril flaring  
  • Stretching mouth open
  • Crunching face
  • Tongue clicking at the back of the throat
  • Different breathing patterns
  • Overemphasized (almost violent) head shaking
  • Stumbling repeatedly over the first few words of a sentence

Each of these tics come and go and he experiences at least two of them simultaneously. Each phase lasts a couple of months before moving on to the next batch of tics. They get really activated by stress, fatigue, excitement. They calm down when he’s relaxed. At their worst, he tics a couple of times per minute for a couple of weeks straight. This is the hardest time because it’s harder for him to concentrate, gives him headaches, and is exhausting both mentally and physically. As he’s reached puberty they have really kicked into high gear, which is normal. If his tics get too obtrusive or the social implications get worse as he goes through junior high and high school, medication is an option. Although he will always have this syndrome, the more noticeable tics usually slowly fade away in severity until adulthood.

The cause of Tourette Syndrome is unknown, but genetics play a clear role. TS commonly co-occurs with a number of other conditions, including ADHD, OCD, anxiety, sleep problems, etc. Nate has some obsessive-compulsive tendencies, but they haven’t been too serious and we’ve been able to manage them just fine.  

Nate is fairly easy-going with all of this (unless his tics give him a headache). He understands that everyone has “something” that is “different” about them and this just happens to be his “something different”.

I have to give praise again to the parents and teachers in this neighborhood. Nathan has NEVER been made fun of for his tics, even when they’ve been at their worst at school. All the kids in his classes accept him just the way he is and that has made his life with Tourette so much easier on him. I’ve meant to thank some of you personally, but just know that you have touched my mother heart. Thank you, thank you for teaching your kids and your students to be kind.

Nathan has always pretty sensitive, but through our own emotional immaturity, Rob and I used to push him to “buck up” and not feel things so deeply. Through heaven’s help, we’ve learned how unfair that can be so we’ve done a bit of a 180-degree turn on that way of parenting. Now, it’s fine if he feels sad or upset over something…even if we don’t understand why. Now, we listen. We hug. We empathize. We try to understand and help him to understand his own deep feelings. This approach has been incredibly rewarding for all of us.  

I find myself saying, a lot lately, “He’s twelve now…” This is my way of reminding myself that he can make more and more of his own choices. He gets more freedoms but also more responsibility. It’s also a way of “pinching” myself that my little boy is not so young anymore. As I look at his pictures and videos of past years, I just can’t believe his intelligence, kindness, and humor. This boy is MY boy and I love him so dearly. He’s really close to all of our hearts.

A Happily-Ever-After Wedding!

It has been a long time since we’ve had a wedding in the family. We all had such a fun and happy time celebrating together. It was an honor to be a part of my niece’s wonderful day! 
 

DIY s’mores were a really fun idea!

Lots of cutesy cupcakes!

Wishing Elizabeth and Justin the Happily Ever After they have earned!

Friends and family can view and download these and more pics here:

http://www.rjsnowphotography.com/Client-Proofs/2016/Liz–Justin

An Afternoon at Temple Square

A few weeks ago we had a pretty busy but excellent weekend. On Sunday we had an early baby blessing of a new niece (Breanna’s daughter Violet) and a baptism later that afternoon (Breanna’s son Joe). It was a gorgeous day so to fill up some of our time we spent a good chunk of the day downtown at Temple Square. It was well worth it as you’ll see below.

Temple, Fuji X-T10, 1/280s, f/11, ISO 200
Temple, Fuji X-T10, 1/280s, f/11, ISO 200

We started our tour at the conference center for a bathroom stop. We walked into the main room and were quickly seized upon by a missionary volunteer. People are not allowed to wander the building alone. However, she was very willing to take us exactly were we wanted. The kids wanted to see the roof.
After visiting the roof we walked across the street. The square was teaming with the vibrancy of spring life following a cold winter. Trees with new leaves, vibrant spring flowers, blue sky, and nice clouds.
I snagged this photo of the temple with my new camera as we walked into the plaza. I’m very happy with it.

Julie, Fuji X-T10, 1/70s, f/13, ISO 200
Julie, Fuji X-T10, 1/70s, f/13, ISO 200

We noticed some incredible blossoms near the RS building. I wanted a portrait of Julie but was having trouble getting the light to cooperate until I noticed the huge reflector (RS building itself) on the other side of the trees. Problem solved = incredible light for Julie. Nice! She just needed to brave the eye-piercing light reflected off such a huge white wall.

Flowers, Fuji X-T10, 1/450s, f/13, ISO 200
Flowers, Fuji X-T10, 1/450s, f/13, ISO 200

Here is my take on the spring flowers. I let the strong and direct sunlight light the blossoms from behind and make the blooms the main feature. Everything else fell to the background. Flowers are so frequently photographed because they are truly amazing and a delight.

COPB, Fuji X-T10, 1/210s, f/11, ISO 200
COPB, Fuji X-T10, 1/210s, f/11, ISO 200

The Church Office Building played a central part in our history. Julie worked there on the 14th floor for years before Nate was born. I used to take the train back from the University of Utah and study for hours in the cafeteria until Julie was done working. She’d come visit me on breaks and sometimes bring me a treat. Those were good times. I took this photo in memory of those times.

Nate, Fuji X-T10, 1/250s, f/3.2, ISO 1000
Nate, Fuji X-T10, 1/250s, f/3.2, ISO 1000

Here is Nate soaking in an exhibit demonstrating some of the methods used to cut the stone for the SLC temple. He was pretty into that.

Cara Angry, Fuji X-T10, 1/400s, f/5, ISO 1000
Cara Angry, Fuji X-T10, 1/400s, f/5, ISO 1000

Here is a photo of my Cara. She would not allow me to take a photo of her all day. Finally she acquiesced to my request on the condition that she be allowed to be angry in the photo. Here is the result.

Moss and Kids, Fuji X-T10, 1/480s, f/5, ISO 1000
Moss and Kids, Fuji X-T10, 1/480s, f/5, ISO 1000

The kids were very into the moss around a few of the flower beds. So much so they determined to smell it and really get close to it. I was lucky to capture it.

Tabernacle in BW, Fuji X-T10, 1/300s, f/9, ISO 200, Edited in Lightroom
Tabernacle in BW, Fuji X-T10, 1/300s, f/9, ISO 200, Edited in Lightroom

The Tabernacle is such a majestic building. For this shot I was trying to get a nice mix of reflections from the metal roof and a batch of nice playful clouds. I like how it worked out.
The bottom line to the story is that we had a great time on a wonderful spring afternoon at Temple Square. It is a peaceful place to wander and spend time with the family.